The Platform of Plasma Protein Users (PLUS) is a consortium of 7 patient organisations representing people living with treatable rare plasma related disorders.

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Publications

Statements, position papers, letters

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Members

Discover the 7 organisations

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Conditions

Plasma related disorders

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Plasma

Plasma is the liquid part of blood

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LATEST PUBLICATIONS

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Plasma Users
PlasmaUsersPlasma Users@PlasmaUsers·
25 Jun

To those of say compensating #plasma donors is unethical and dangerous: Do you understand that patients in the world depend on #PDMPs coming largely from compensated donations? That regulatory authorities such as EMA have long deemed these products to be safe and effective?

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PlasmaUsersPlasma Users@PlasmaUsers·
25 Jun

PLUS has been promoting patient centredness and stakeholder collaboration around issues linked to the collection of #plasma and access to #PDMPs since 2010. Read our two first consensus statements here: https://bit.ly/3jeFZ96 (2010) and https://bit.ly/3xT088N (2011) !

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ipopi_infoIPOPI@ipopi_info·
25 Jun

28th June will be a very special day… do you know why?
#Neonatalscreening helps speed-up diagnosis and treatment of #rarediseases in newborns, it can even be life-saving! https://bit.ly/3zW6UfT
#InternationalNeonatalScreeningDay #INSD #ISNS #neonatal #Screen4Rare

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