Mission and Objectives

The Platform of Plasma Protein Users (PLUS) is a consortium of seven patient organisations representing people living with treatable rare plasma related disorders such as haemophilia, primary immunodeficiencies and alpha1 anti-trypsin deficiency among others. Together, these organisations  represent the views of more than 110,000 people living with treatable rare plasma related disorders in Europe.

PLUS represent organisations of patients with treatable rare diseases linked by common therapies based on products manufactured from human plasma.
We are of the firm view that as the end users of these vital therapies our voice as the major stakeholders should be given primacy in consultation with the EU Institutions on any matter related to relevant Directives and Guidelines and major issues relating to blood and plasma derived products.

Steering Commitee

Johan Prevot
Johan PrevotExecutive Director of IPOPI
Executive Director of IPOPI (International Patient Organisation for Primary Immunodeficiency)
Brian O’Mahony
Brian O’Mahony Chief Executive of the Irish Haemophilia Society
Chief Executive of the Irish Haemophilia Society and member of the European Haemophilia Consortium
Frank Willersinn
Frank WillersinnPresident of Alpha-1 Plus Belgium
President of Alpha-1 Plus Belgium and member of the Alpha1 Foundation

OUR PUBLICATIONS

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